Camp Sunshine (Sebago Lake, Maine) provides respite for children with life-threatening illnesses and their families. The year-round program is free to all families, and includes 24-hour onsite medical and psychosocial support. Camp Sunshine also provides bereavement sessions for families who have lost a child to supported illnesses. The grant from Health Decisions Resources was used to make the Camp´s services better known among appropriate clinicians and health care organizations, and supported a May 2015 conference to help cancer patients and their parents with emotional and educational needs during the post-treatment period. (1/15)
Jewish Family Service of MetroWest (Framingham). The grant from Health Decisions Resources supported development of specialized on-line training for volunteers in the JFS-MW “Patient Navigator” program. Patient Navigators are volunteers specially trained by JFS-MW to assist frail seniors in the MetroWest area with their visits to physicians and other clinicians. Training currently includes both didactic and experiential learning, as well as personal mentoring, about stages of aging, effective clinician-patient interactions, and practical ways to maximize a senior’s clinical visit. (1/2015)
Franciscan Children´s Hospital (Brighton, Massachusetts), specifically for the Joyce Reardon Nursing Education Fund. Until her death in 2012, Dr. Reardon was the Director of Nursing Education and Coordinator of Behavioral Health Services at Franciscan. She earned a degree in Nursing from Salve Regina University, a Masters in Psychiatric Nursing from Boston College, and in 2011 a Doctorate of Nursing Practice from Regis College. The grant from Health Decisions Resources will support nursing education that enhances the relationships among patients, their families and the clinicians who care for them, and to support a team-building program for special unit nurses. Franciscan Hospital provides care for children with special health care and educational needs. (1/2015)
Wake Up to Dying Project (Montpelier, Vermont). HDR supported a 4-day Traveling Exhibit of the Project held in Somerville, Massachusetts, September 2015. HDR also made an in-kind contribution of Massachusetts Health Care Proxy forms and materials for public distribution; and participated in a panel of professional resources on end-of-life planning. The Wake Up to Dying Project aims to shift our cultural perspective on death from fear and avoidance toward familiarity by inviting people to acknowledge death, be prepared for it, and live more fully for having done so. It does so by gathering and sharing first person audio stories about death, dying, and life. It brings these stories, along with related art, hands-on engagement opportunities, and workshops to communities in a creative traveling exhibit. Visitors to the Traveling Exhibit can listen to audio stories about death, dying and life; explore end-of-life resources from organizations in their community; attend a workshop or community discussion with local leaders in end-of-life care; add their “bucket list” goals to a massive chalkboard; and bring what they learn and experience back to their home and community.
Adaptive Design Association, Inc. (New York). The mission of the Adaptive Design Association (ADA) is to ensure that people with disabilities receive the custom adaptations they need to fulfill their developmental, social, academic, and vocational potential; and to instigate widespread replication by providing a full range of hands-on education, from basic introduction to rigorous apprenticeships, for people wanting to establish Adaptive Design Centers within their schools, organizations, and communities across the globe.
In partnership with Quality Services for the Autism Community (QSAC), ADA has designed an innovative program to provide an employment training experience for young adults with disabilities. The program also provides a training / mentoring experience for pre-vocational occupational therapists through highly specialized fieldwork. The goal is to train young adults with autism to work in a supervised setting to create individualized adaptive equipment for children with disabilities. Participants with autism will commit to the training program for minimum of 1 year, participating twice a week for a total of 8 hours. ADA will provide hands-on training to both the advanced-fieldwork occupational therapy interns and supervisors so they can better train and mentor young adults with autism. Funding from Health Decisions Resources will help ADA offset the costs of supervising and mentoring the pre-vocational interns. (7/16)
A 2015 grant to ADA supported five university students participating in the Adaptive Design Association Summer 2015 Made To Learn Internship Program. Participants spent three months developing skills in adaptive design, custom fabrication, and teamwork while they create custom adaptations for children in New York City. Graduate and undergraduate students represented the fields of physical and occupational therapy, social work, education, industrial design and engineering.
Massachusetts Health Decisions. Funding to support the development of an American Sign Language version of the Massachusetts Health Care Proxy, including rewriting assistance of a certified sign language interpreter at Gallaudet University, and video recording (with captions) of an ASL translation. Video of the Proxy and related materials will be available for viewing and linking on the website of Massachusetts Health Decisions. (Fall 2016)
North Carolina Health News (Chapel Hill, NC). Funding to support ‘Lives on the Hill,’ an oral history project of North Carolina Health News. Through recorded interview with former residents, families, staff, and members of the public, the project will help commemorate the Dorothea Dix Hospital–a 300-acre residential psychiatric hospital which served central North Carolina from 1856 to 2010, and is situated just a short walk from downtown Raleigh. The city of purchased the property from the state in 2015 and intends to convert the property to a public park with the guidance of a Conservancy. The enabling legislation required a suitable memorial for the institution. ‘Lives on the Hill’ is convening all stakeholders in a public discussion of the importance of the institution in the lives of so many families. HDR’s grant supports production and live-streaming of the event by UNC TV, the local public broadcasting station. (8/16)